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AMN-107 Talk

"Caution" All Gleevec Patients, Please Read This!

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 3 month AMN results
by Vicky

Good news: 7 for 20 metaphases Ph+ in 3 months. Improved from 20 for 20 initially. Worrisome news: CBCs borderline. I continue to pray that my CBCs stabilize. 52K platelets. Has been that way for 2 weeks. Let's hope they stay there or go up. The WBC and ANC were on the low range as well. I hope they go up too. For now I can remain on AMN at 2 pills once a day. (Had to drop the dose because my platelets went down too low.) That is my news. In all a very good day. Good to hear my platelets had stabilized for now and that the AMN looks like it is working.

Still fighting the damn insurance battle about the double unit cord blood protocol given in all likelihood I won't be able to tolerate the AMN long term (i.e. keep my CBCs high enough). However...at least the above news tells me we are making very good progress.

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